A National Data Guardian for Health and Care project, co-funded by Understanding Patient Data and the Sciencewise programme has commenced. The dialogue will explore public attitudes towards the sharing of health and social care data for data-driven research and innovation. Specifically, how does the public weigh up benefits and disbenefits of health and social care data sharing for research, and what benefits count as ‘good enough’?
The dialogue will help inform guidance or advice that the National Data Guardian intends to develop. This would help organisations to carry out public benefit assessments with greater confidence that this is in line with public values.
To find out more about the dialogue, click here.